My Gluten Intolerance Symptoms

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bouquet of dried wheat sprigs in bucket on road

For years, I had them without knowing, gradually worsening over time, until one day it was obvious that something wasn’t right.

I’ve had symptoms from gluten for at least 10 years before noticing that something was wrong, it was just little things that seemed to be normal, most people and also doctors don’t know much about food intolerances and coeliac disease or non-coeliac gluten sensitivity. Many symptoms are just like normal things that people have… or maybe not, maybe there is a cause. It started with many small things that just gradually got more and worse over time, without noticing it.

When you have skin problems and go to see a doctor, they typically don’t get to the root of what’s causing it, they just want to treat it superficially or can’t help at all. Most people lack awareness of food intolerances, but they are a real thing, not life threatening like an allergy, but food intolerances make people suffer a lot. Gluten is the worst if you have coeliac disease or non-coeliac gluten sensitivity, even trace amounts of gluten can make you sick, avoid products with may contains! Some people might just have a minor gluten sensitivity, which might not be as bad, but severe gluten intolerance or coeliac disease is no joke! I’ve found that with other food intolerances than gluten, may contains aren’t a problem usually. After 10 months of being gluten free I did a gluten challenge to get a coeliac blood test done, that’s when I realised how sick gluten made me and I could identify more of my symptoms. It took months to recover after the gluten challenge, even though then I still wasn’t at 100% again. It takes the gut about 6 to 12 months to heal completely after eating gluten! After doing a lot of research online and reading many articles, I slowly became more aware of what could be actual symptoms of gluten intolerance. There was also one article, which had like a huge comment section, it took me hours to read all the comments, it was amazing to read about other peoples experiences and symptoms from gluten.

My gluten intolerance symptoms

  • Brain fog
  • Lack of concentration
  • Tiredness
  • Headache
  • Feeling constant pressure on head
  • Grogginess
  • Grumpiness
  • Having trouble getting out of bed in the morning
  • Exhaustion
  • Car sickness, also without being in any vehicle or after just 5 min in the car on a slow road
  • Constant low fever between 37.2 and 37.8 °C
  • Acne
  • White heads
  • Black heads
  • Oily skin
  • Tonsil stones
  • Lowered appetite
  • Feeling weak
  • Feeling sick
  • Grey hair
  • Brittle hair
  • Brittle nails
  • Missing wisdom tooth
  • Yellowish teeth
  • Constipation
  • Muscles hurting often, difficulty building up muscles, needing a period of rest after a period of working out, my body can’t keep up with my ambitions
  • IBS
  • Multiple food intolerances

A lot of these symptoms are caused by a lack of nutrients, which the body can’t absorb because gluten is damaging the gut.

Coeliac disease can have more than 200 symptoms, it is hard to diagnose in adults, it is common that diagnosis can take 10 years or longer after noticing the first symptoms.

I might have coeliac, but I don’t know for sure. My coeliac disease blood test was negative, but accuracy was only 70% after I did a 4-week gluten challenge, only 95% of coeliacs have positive blood tests anyway. I should have gotten tested before going gluten free, but I didn’t know back then how sick gluten was making me, also I didn’t know much about coeliac disease and I didn’t have the common symptoms which usually are listed in all those mainstream articles. I did notice that even 100 ppm low gluten oatly (not gf in Europe) made me feel sick, which meant I couldn’t eat traces of gluten, so only gf oat products and avoiding may contains.

It was coeliac awareness week, when I first realised that it was possible that I might have coeliac disease. Multiple gf bloggers on Instagram posted about coeliac disease and the possible symptoms, which weren’t only those few mentioned in mainstream articles.

Coeliac disease or non-coeliac gluten sensitivity can have the same exact symptoms, symptoms vary in each and every individual. Get tested for coeliac disease before going gluten free! Otherwise, the test won’t work.

Gluten can damage the gut quite badly which can lead to IBS and multiple other food intolerances, the good news over time on a gluten free diet some food intolerances and IBS might be reversed once the gut has healed and is healthy again. Only gluten intolerance can’t be healed! At least I hope that one I can eat some more foods again, because it would be a lot easier to only be intolerant to gluten.

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